About Us
Our Mission
The Illinois Spina Bifida Association works to improve the quality of life of children, adults, and families living with spina bifida.
About Spina Bifida
Spina bifida is a lifelong neurological condition that affects the spine and is usually apparent at birth. Spina bifida can cause physical and developmental disabilities that range from mild to severe. Spina bifida is a complex condition that, for many, requires specialized medical care and daily attention to health and wellness. More
Program Strategy
ISBA works to accomplish its mission with a three-part program strategy:
Promote skills development and independence;
Support individuals and families through outreach, education and advocacy; and
Invest in people through targeted financial assistance. More
Organizational Profile
The Illinois Spina Bifida Association (ISBA) is a 501(c)(3) nonprofit organization founded in 1969 by a group of dedicated parents. Our programs are designed to work in partnership with families, service providers, volunteers, researchers, and funders throughout the state and country. ISBA’s office is located at Shriners Children’s Chicago.
ISBA’s programs are available to anyone living with spina bifida in Illinois. There are no membership requirements. Programs are available at no- or low-cost.
Updated 4/2/2024