Online and Social Media Resources

Click here for a list of apps and websites that may be helpful in managing Activities of Daily Living (ADLs).

The Arc's Tech Toolbox™
An online place to find, share, rate and review technology for people with intellectual or developmental disabilities.

Bowel Management for Spina Bifida - A website run by parents and adults with SB who are not medical professionals, but share their successes and lessons learned.  They also have a Facebook group for people living with spina bifida. 

Chicago Parent - Special Needs  
An online magazine.

Christopher & Dana Reeve Foundation resource finder  
Search by zip code or location to find local resources and organizations that support people living with paralysis.

Disability Scoop 
An online magazine.

Facebook Groups - Spina Bifida Room, Adults with Spina Bifida From Ages 18 to 80, Health and Wellness for Women with Spina Bifida, Spina Bifida Parents Facebook Group, Mommies of Miracles, etc.
These private Facebook groups are a place to connect with others who live with Spina Bifida or other physical disabilities.  There are many other spina bifida related Facebook groups, just type 'spina bifida' in the search box and click on 'groups.'

Faces of Spina Bifida
An online magazine.

Families of Lurie Children's Spina Bifida Clinic
A private Facebook group administered by families, for other families.        

I Live with a Disability
A social networking website for people with disabilities.

An online supportive community for people with disabilities.

PACER Center Mobile Apps to Support Transition-Age Youth
This list includes apps that have been reviewed by PACER Center parents and professionals and found to be useful and well-designed.

SIBS: Supporting Illinois Brothers and Sisters
SIBS is a group that supports brothers and sisters of all ages in Illinois that have a sibling with a disability.

Spina Bifida Kids Group
An online group for parents of kids with spina bifida through BabyCenter.

Their goal is to help parents of children living with learning and attention issues.  They provide a lot of online resources to help your child succeed in school, social interactions and everyday life.