About Us

Our Mission

The Illinois Spina Bifida Association works to improve the quality of life of children, adults, and families living with spina bifida.

About Spina Bifida

Spina bifida is a lifelong neurological condition that affects the spine and is usually apparent at birth.

Spina bifida can cause physical and developmental disabilities that range from mild to severe.

Spina bifida is a complex condition that, for many, requires specialized medical care and daily attention to health and wellness.


Program Strategy

ISBA works to accomplish its mission with a three-part program strategy:

  • Promote skills development and independence;

  • Support families through outreach, education and advocacy; and

  • Fund scholarships, medical equipment, research and emergency help. More

Organizational Profile

The Illinois Spina Bifida Association is a 501(c)(3) nonprofit organization founded in 1969 by a group of dedicated parents.  Our programs are designed to work in partnership with families, service providers, volunteers, and funders throughout the state.  The organization formerly used "Spina Bifida Association of Illinois" as an alternate name.

ISBA serves more than 900 Illinois families and has outreach collaborations with spina bifida clinics at:

  • Shriners Hospitals for Children - Chicago

  • OSF HealthCare in Peoria

  • Ann & Robert H. Lurie Children’s Hospital of Chicago

  • Shirley Ryan AbilityLab

  • Loyola Medicine




Job Openings

Professional Advisory Council