Resources

The following is a list of organizations and agencies that may prove useful*. Please send us an e-mail if you have a suggested resource for us to include on this page.

Click here for the Chicagoland Adult Resource Guide for Adults with Spina Bifida.

Click here for a Timeline of Services for Children and Adults with Spina Bifida, prepared by Ann and Robert H. Lurie Children's Hospital of Chicago.

*These links are being provided for informational purposes only; they do not constitute an endorsement or an approval by ISBA of any of the products, services or opinions of the institutions, companies or organizations listed. ISBA bears no responsibility for the accuracy or content of the external site or for that of subsequent links.
*We recommend using discretion when sharing personal information on social media.

Hospitals and Spina Bifida Clinics

General Information and Programs

On-line and Social Media Resources

Sports and Recreation

Housing

Transportation

Medical Supply Companies

Personal Mobility

Orthotic Vendors

Driving Rehabilitation Programs

Special Needs Planning and Legal Assistance

Special Education and IEP Resources

SSI and Medicaid Resources

Adult Programs

Pediatric/Adolescent Programs and Resources

Employment

Counseling

Advocacy

Research

Hospitals and Spina Bifida Clinics

Ann & Robert H. Lurie Children's Hospital of Chicago Spina Bifida Clinic

2515 N. Clark St.
Chicago, IL 60614
Phone: 312-227-5340

Clinic is usually held every Tuesday morning beginning at 9 a.m. They currently serve approximately 20-25 patients per day and provide care for patients ranging from birth to 21 years of age. The clinic has a shuttle that runs to and from the hospital and is located near convenient public transportation. They do accept public aid. A list of other accepted insurance programs can be found on their website at www.luriechildrens.org. To make an appointment call 312-227-5340.

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The Shirley Ryan AbilityLab (formerly the Rehabilitation Institute of Chicago) Adult Spina Bifida Clinic

355 E. Erie St.
Chicago, IL 60611
Phone: 1-844-355-ABLE or 312-238-1000

The Shirley Ryan AbilityLab offers an Adult Spina Bifida Clinic, a multidisciplinary clinic for adults with spina bifida. The clinic includes specialist physicians in neurosurgery, urology, orthopaedics and physiatry (a doctor who specializes in physical medicine and rehabilitation). This clinic is offered on the first Friday morning of each month on the fifteenth floor of the new hospital, located at 355 E. Erie Street in Chicago. Because space is limited, appointments should be scheduled at least three to four months in advance. There is a parking garage attached to the building. For more information on scheduling an appointment in the Adult Spina Bifida Clinic, call 1-844-355-ABLE or 312-238-1000.

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Shriners Hospitals for Children - Chicago

2211 N. Oak Park Ave.
Chicago, IL 60707
Phone: 773-622-5400, 800-470-0232

The Myelomeningocele Clinic is held on the 1st, 2nd, 3rd, and 5th Thursdays of the month beginning at 8:30 A.M. New patients can request an appointment by calling 800-470-0232. Approximately 15 patients are seen in clinic per day ranging in age from infancy to their age limit of 21 years old. The clinic is close to the Metra train as well as the CTA. Children and adolescents receive all services in a family-centered environment.

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The University of Chicago Medicine

5841 S. Maryland Avenue
Chicago, Illinois 60637
1-888-824-0200 or 773-702-1000

Spina Bifida Clinic

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OSF Healthcare Children’s Hospital of Illinois

Spina Bifida Clinic
420 N.E. Glen Oak, Suite 301
Peoria, IL 61603
Phone: 309-624-4064

The Spina Bifida Clinic is held on the second Monday of each month. The clinic is a multi-disciplinary facility, which aids families in meeting the special challenges associated with Spina Bifida. The staff consists of a developmental pediatrician, neurosurgeon, orthopaedist, urologist, neuropsychologist, neurodevelopment/physiatry physicians, and clinic coordinator. They also include representatives from: orthopaedic supplies, physical therapy, dietary, Department of Specialized Care for Children (DSCC), and social services. The Clinic is part of the Pediatric Surgery Center, located in Hillcrest Medical Plaza, 420 N.E. Glen Oak Ave., Ste. 301. For more information or to make an appointment, please contact 309-624-4064.

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Advocate Children's Hospital

4440 W. 95th St.
Oak Lawn, IL 60453
Phone: 708-684-1013

Advocate Children's Hospital has a multidisciplinary team that treats children with spina bifida. The team includes specialists in neonatology, neurodevelopment, neurology, neurosurgery, occupational therapy, physical therapy, physiatry, and social work.

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Advocate Lutheran General Children's Hospital

1675 Dempster Street
Park Ridge, IL 60068
Phone: 1.800.3.ADVOCATE

Advocate Lutheran General Children's Hospital has a multidisciplinary team that treats children with spina bifida. The team includes specialists in neonatology, neurodevelopment, neurology, neurosurgery, occupational therapy, physical therapy, physiatry, and social work.

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Shriners Hospitals for Children - St. Louis

2001 S. Lindbergh Blvd.
St. Louis, MO 63131
Phone: 314-432-3600, ext. 1672
- new patients ext. 1122

Spina Bifida Clinic is the 4th Friday of the month.

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Children's Hospital St. Louis

One Children's Place
St. Louis, MO 63110
(314) 454-5333

Spina Bifida Clinic appointments are available the second and fourth Tuesday of the month, 8 a.m. to 4 p.m., in Suite 2A, second floor of St. Louis Children's Hospital. For appointments call 314.454.KIDS (5437) or 800.678.KIDS (5437), ask for Shellie.

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Loyola Medicine

2160 S. First Ave.
Maywood, IL 60153
(888) 584-7888

Loyola has several departments relevant to people with Spina Bifida, including pediatrics,urology, orthopedics and neurosciences.

Click here for more info

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Marianjoy Rehabilitation Hospital

26W171 Roosevelt Rd.
Wheaton, IL 60187
(630) 909-8000 or (800) 462-2366

Offers inpatient and outpatient services including physical rehabilitation for adults and children.

Click here for more info

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Northwestern Medicine/Northwestern Medical Faculty Foundation

675 N. St. Clair
Chicago, IL 60611
(312) 926-2000

Northwestern has several departments relevant to adults with Spina Bifida, including urology, orthopedics and neurology.

Click here for more info

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General Information and Programs

Links will open in a new window

Spina Bifida Association
1600 Wilson Blvd, Suite 800
Arlington, VA 22209
800-621-3141, 202-944-3285

Americans with Disabilities Act Disability and Business Technical Assistance Centers (DBTACs)
The DBTACs provide information, referral, TA, and training on the ADA.
800-949-4232

Center for Independent Futures
1015 Davis St.
Evanston, IL 60201
847.328.2044

Dedicated to helping individuals with disabilities live full and more independent lives. 

Community Support Services
9021 Ogden Avenue
Brookfield IL 60513
708.354.4547

Initiates, provides and promotes services for people with intellectual/developmental disabilities and their families, within their communities, in order to strengthen their independence, self-esteem, and ability to participate in and contribute to community life. For residents of western Cook or eastern DuPage counties.

Council for Exceptional Children, Division on Career Development and Transition
Promotes efforts to improve the quality of and access to career/vocational and transitional services, increases the role of education in career development and transition goals, and influences policies affecting services for persons with disabilities.

Illinois Prioritization of Urgency of Need for Services (PUNS) database
Developmental Disabilities Hotline - 1-888-DD-PLANS

A database of Illinois infants, children, adolescents, and adults with developmental disabilities who have needs for developmental disability services or supports. The PUNS database helps identify and plan for your immediate needs, through the IL Department of Human Services.

National Council on Independent Living
1710 Rhode Island Avenue, NW 5th Floor
Washington, D.C. 20036
877-525-3400, 202-207-0334

Society of Urologic Nurses and Associates
Patient information fact sheets in English and Spanish. For more information, contact Chicago Metro SUNA

The Spina Bifida & Hydrocephalus Association
Info about the benefits of folic acid and folate during pregnancy. Click here for more info.

Shirley Ryan AbilityLab: Life Center
345 E. Superior Street, First Floor
Chicago IL 60611
312-238-5433
*The Life Center helps you locate disability organizations, government agencies, support groups, and health information on key areas of life.

Illinois Provider Directory
This website serves as a one-stop shop for finding special health care providers of any type in your area.

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On-line and Social Media Resources

Click here for a list of apps and websites that may be helpful in managing Activities of Daily Living (ADLs).

SIBS: Supporting Illinois Brothers and Sisters
SIBS is a group that supports brothers and sisters of all ages in Illinois that have a sibling with a disability.

Sibling Support Project
This website has a directory of "sibshops" in Illinois.

I Live with a Disability
A social networking website for people with disabilities.

MDJunction
An online supportive community for people with disabilities.

Care Pages
CarePages are free, easy-to-use Web pages that help family and friends communicate when a loved one is receiving care. It takes just a few minutes to create a CarePage, share it with friends and family, and build a community of support.

Spina Bifida Room
This private Facebook group is a place to connect with others who have Spina Bifida. Posts must pertain to Spina Bifida. There are many other spina bifida related Facebook groups, just type 'spina bifida' in the search box and click on 'groups.'

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Sports and Recreation

Special Recreation Association Network of Illinois (SRANI)
List of Special Recreation Associations throughout the state of Illinois.

Adaptive Adventures
230 Greenleaf Avenue
Wilmette, IL 60091
847-251-8445
Contact Adaptive Adventures

AMBUCS
There are Illinois Chapters in Naperville - Windy City Trykes, Pekin and others.
Dedicated to creating mobility and independence for people with disabilities. They have a program that provides adaptive bikes.

YMCA Camp Independence
32405 N. US Highway 12
Ingleside, IL 60041
Phone: 847.546.8086
Camp for people with spina bifida, kids ages 7 and up and adults. Contact Brandon for more information.

Central Illinois Riding Therapy
305 Neumann Dr.
East Peoria, IL 61611
Phone: (309) 699-3710
Promotes the well-being of persons with disabilities through the provisions of horseback riding and other related activities within a safe and enjoyable atmosphere.

Champaign-Urbana Special Recreation (CUSR)
1311 W. Church Street
Champaign, IL 61821
Phone: 217-239-1152

Chicago Park District
541 N. Fairbanks, 4th floor
Chicago, IL 60611

Chicago Park District- Special Recreation
312-742-5670

Creative Mobility
2930 Campton Hills Rd
St.Charles, Illinois, 60175
630-587-8100
*Adapted bikes

Dare2tri
847 N. Damen Ave. #2R
Chicago, IL 60622
312-967-9874
Provides opportunities for people with disabilities to get involved in the sport of paratriathlon.

Kishwaukee Special Recreation Association
1403 Sycamore Rd.
DeKalb, IL 61821
815-758-6663 x122

The Diveheart Foundation
Provides scuba diving opportunities for people with disabilities.
5100 Main St.
Downers Grove, IL 60515
Mailing Address:
900 Ogden Ave., #274
Downers Grove, IL 60515
Phone: 630-964-1983
Fax: 630-225-5357
E-mail: info@divehart.org

Equestian Connection, NFP
600 Bradley Rd.
Lake Forest, IL 60045
Mailing Address:
872 S. Milwaukee, #273
Libertyville, IL 60048
847-615-8696

Fox Valley Special Recreation Association (FVSRA)
2121 W. Indian Trail
Aurora, IL 60506
Phone: 630-907-1114
Fax: 630-907-1116

Gateway Special Recreation Association (Gateway)
15W431 59th St.
Burr Ridge, IL 60527
Phone: 630-325-3857 ext.110
Fax: 630-325-3891
Contact Gateway

Great Lakes Adaptive Sports Association (GLASA)
400 E. Illinois Rd.
Lake Forest, IL 60045
847-283-0908

Bike and Roll Chicago
239 E. Randolph Street
Chicago, IL 60602
888-BIKE-WAY hand cycle rentals

Heart of Illinois Special Recreation Association (HISRA)
8727 N. Pioneer Rd.
Peoria, IL 61615
Phone: 309-691-1929
Fax: 309-691-4383
Contact HISRA

The Hornets Sled Hockey Program
Edge Ice Arena
735 E. Jefferson St.
Bensenville, IL 60106
847-778-9019
Contact JJ O'Connor

Illinois River Valley Special Recreation Association
201 Veterans Dr.
East Peoria, IL 60611
Phone: 309-699-3923
Fax: 903-699-3419

Judd Goldman Adaptive Sailing Program
(Summer Address)
Burnham Harbor
1362 Lynn White Drive
Chicago, IL 60605
312- 747-7684
Contact Judd Goldman Adaptive Sailing

Lily Cache Special Recreation Association
LCSRA is a cooperative extension of the Bolingbrook Park District and Plainfield Park District that provides year-round recreation programs for individuals with disabilities.
230 E. Briarcliff
Bolingbrook, IL 60440
Phone: 630-739-1124

Keen Chicago
P.O. Box 06255
Chicago, IL 60606
312-876-2535
Contact Keen Chicago
Programs located at:
High Ridge YMCA
2424 W. Touhy
Chicago, IL 60645
773-262-8300

Lincolnway Special Recreation Association (LWSRA)
1900 Heather Glen Dr.
New Lenox, IL 60451
Phone: 815-320-3500
Fax: 815-660-8831

Maine-Niles Assocation of Special Recreation (MNASR)
6820 W. Dempster St.
Morton Grove, IL 60053
Phone: 847-966-5522
Fax: 847-966-8340

Midwest Wheelchair Sport and Social Club
(Basketball, softball, tennis, outings and more...)
Lincolnway Special Recreation Association (see above)
Keith Wallace 773-220-4522

The Miracle League of Joliet
320 Water Stone Way - Suite 100
Joliet, IL 60431
815-258-3799
815-744-3041

Northeast DuPage Special Recreation Association (NEDSRA)
1770 W. Centennial Pl.
Addison, IL 60101
Phone: 630-620-4500
Fax: 630-620-4598

Northern Illinois Special Recreation Association (NISRA)
285 Memorial Dr.
Crystal Lake, IL 60014
Phone: 815-459-0737
Fax: 815-459-0388

Northern Suburban Special Recreation Association (NSSRA)
3105 MacArthur
Northbrook, IL 60062
Phone: 847-509-9400
Fax: 847-509-1177

Rockford Park District - Adaptive Sports
401 S. Main St.
Rockford, IL 61101
Phone: 815-987-1601
Fax: 815-987-1607

Northwest Special Recreation Association (NWSRA)
3000 W. Central Rd., Suite 205
Rolling Meadows, IL 60008
Phone: 847-392-2848
Fax: 847-392-2870

Oak Lawn Park District/Special Recreation Cooperative
4625 W. 110th St.
Oak Lawn, IL 60453
Phone: 708-857-2200 Contact Todd
Fax: 708-857-7614

Peoria Wildcats Wheelchair Basketball Team
Contact Katie Hogan
309-691-1929

River Valley Special Recreation Association (RVSRA)
1335 E. Broadway
Bradley, IL 60915
Phone: 815-933-7336
Fax: 815-933-4632
Contact RVSRA

Shirley Ryan AbilityLab: Adaptive Sports and Fitness Program
541 North Fairbanks, Mezzanine
Chicago, IL 60611
312- 238- 5001

Special Opportunities Available in Recreation (SOAR)
109 E. Olive, P.O. Box 3157
Bloomington, IL 61702
Phone: 309-434-2260

Special Recreation Association of Central Lake County (SRACLC)
290 Oakwood Rd.
Vernon Hills, IL 60061
Phone: 847-816-4866
Fax: 847-816-4876

Special Recreation Services of Joliet and Channahon (SRJC)
3000 W. Jefferson St.
Joliet, IL 60435
Phone: 815-741-7275 x169
Fax: 815-741-7280

Special Recreation Services of Northern Lake County (SRANLC)
814 Hart Rd., Round Lake, IL 60073
Phone: 847-740-9828 Jessica

2400 Dowie Memorial Dr., Zion, IL 60099
Phone: 847-746-5500; Fax: 847-746-5506

2200 E. Gradd Lake Rd., Lindenhurst, IL 60046
Phone: 847-356-6011; Fax:847-356-6063

732 Genesee St., Waukegan, IL 60085
Phone: 847-360-4760; Fax: 847-662-2577

South East Assocation for Special Parks And Recreation (SEASPAR)
SEASPAR is a special recreation association in Downers Grove, IL that offers recreation programs for individuals with disabilities throughout 11 communities.

South Suburban Special Recreation Association (SSSRA)
19910 80th Ave.
Tinley Park, IL 60487
Phone: 815-806-0384
Fax: 815-806-0390

South West Suburban Special Recreation Association (SWSRA)
12521 S. Kostner Ave.
Alsip, IL 60803
Phone: 708-389-9423
Fax: 708-389-6458

Synergy Adaptive Athletics
1770 W. Centennial Pl.
Addison, IL 60101
Phone: 630-620-4500
Contact: Jason

Tri County Special Recreation Association (Tri County)
10 Montrose Dr.
Romeoville, IL 60446
Phone: 815-407-1819

University of Illinois Adapted Sports Camps
1207 South Oak St.
Champaign, IL 61820
217-333-4607
Contact UIUC Sports Camps

Warren Special Recreation Association
17801 W. Washington St.
Gurnee, IL 60031
Phone: 847-244-6619
Fax: 847-855-8687

Western DuPage Special Recreation Association (WDSRA)
116 N. Schmale Rd.
Carol Stream, IL 60188
Phone: 630-681-0962
Fax: 630-681-1262

West Suburban Special Recreation Association (WSSRA)
2915 Maple St.
Franklin Park, IL 60188
Phone: 847-455-2100
Fax: 847-455-2157

YMCA of the USA
101 North Wacker Drive
Chicago, IL 60606
800-872-9622
*Locate your local YMCA.

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Housing

Alden Health Care & Senior Living
Multiple locations throughout the Chicagoland area, Rockford and southern Wisconsin
773-286-3883

Alden Health Care & Senior Living has 38 locations throughout the Chicagoland area, Rockford and southern Wisconsin including Intermediate Care Facilities for the Developmentally Disabled and Assisted Living Facilities.

Anixter Village is an accessible apartment building designed for adults with Spina Bifida. Anixter Village is conveniently located within the Illinois Medical District at 2059 W. Washburne, Chicago. Tenants are strongly encouraged to participate in transition programming to gain skills which can be used in the community. It's owned and operated by Anixter Center and governed by HUD regulations. It's built with the needs of an individual with Spina Bifida in mind.

To request a tenant application for Anixter Village, call the Anixter Center at 1-773-761-1501. Choose extension 1, for "HUD apartment information" and leave a message asking them to send you an application for Anixter Village.

Eden Supportive Living
940 West Gordon Terrace
Chicago, IL 60613
773-472-1020
Locations also in North Aurora and Champaign. Eden Supportive Living offers assisted living housing for physically disabled individuals ages 22-64, combining apartment-style housing with personal care and services.

Deer Path of Huntley
12500 Regency Parkway
Huntley, Illinois 60142
847-515-1800
Deer Path of Huntley is an affordable assisted lifestyle community for adults ages 22-64 with physical disabilities, encouraging resident independence while preserving dignity and providing personalized services.

Illinois Housing Development Authority
111 E. Wacker Dr. Suite 1000
Chicago, Illinois 60601
(312) 836-5200
Their mission is to to finance the creation and preservation of affordable housing in Illinois. Their I-Refi program is designed to help homeowners who are current on their mortgage payments but owe more than their home is worth, due to declining property values in their community.

Mayor's Office for People with Disabilities HOMEMOD Program
People with disabilities in Chicago can apply for accessible home modifications through this program. Click here for the application.

Snow Corps
Volunteers will come shovel your walk during the winter if you request it through this City of Chicago program. Call 311.

Over the Rainbow Association
2040 Brown Ave.
Evanston, IL 60201
847-328-6633
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Transportation

Lurie Children's Hospital Transportation Handout
Transportation: Getting Around [PDF]

Parking Program for People with Disabilities
Parking Program Guide [PDF]

Person with Disabilities Certification for Parking Placard
Parking Placard Application [PDF]

United Access
Provider of wheelchair accessible vehicles, driving systems, mobility seats, handicap lifts, and other vehicle modifications.
706 W. Bradley
Champaign, IL 61820
Phone: 877-662-0320 Fax: 217-398-1843

Easy Access Chicago
Easy Access Chicago provides information on the accessibility of over 100 Chicagoland attractions and transportation methods.

Central Illinois Public Transit
This organization serves the counties Clay, Effingham, Douglas, Fayette, Montgomery, Moultrie, and Shelby. They provide prescheduled transportation to consumers within central Illinois.
To schedule a trip, call 1-855-755-2478.

Dial-A-Ride Rural Public Transportation Program
Provides public transportation in Coles County for individuals over 60, the disabled and the general public of all ages.
Call 217-639-5169 or toll-free at 1-800-500-5505.

New Ability Inc.
This vendor exclusively works on power mobility equipment in vans/cars.
1005 Main St.
Melrose Park, IL 60160
Phone: 708-345-3939

MobilityWorks, Inc.
MobilityWorks offers new and used accessible vans for sale or for rent, sell and install electric scooter lifts, transfer seats, docking systems, hand controls, driving aids and more.
155 E. North Avenue, Villa Park
23855 W. Andrew Road, Plainfield
5050 Dempster Street, Skokie
Sales phone: 877-275-4907

Open Taxis
Open Taxis is a new centralized dispatch system for wheelchair accessible taxis in the Chicagoland area. They operate in the city, city to suburb and suburb to city with accessible vehicles. Customers can prearrange taxi service via phone or e-mail. Corporate accounts are also available!
E-mail for prearranged orders: dispatch1@opendoorsnfp.org
Phone: 855-928-1010

RTA Travel Training Program
The Regional Transportation Authority teaches people with disabilities how to use CTA, Metra and Pace buses and trains. No cost except for transit fairs during training.
Phone: 312-913-3120
Email: traveltraining@rtachicago.org

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Medical Supply Companies

Coloplast
Bowel and bladder supplies, and Coloplast Care program - advice, assistance, tips and tools related to bladder issues.
http://us-cc.coloplastcare.com is their care program website. For more info contact Patricia at uspmc@coloplast.com or Larry at uslje@coloplast.com.


LoFric by AstraTech
Astra Tech produces the LoFric® hydrophilic catheters for intermittent catheterization. LoFric is the world's only catheter with UrotonicTM Surface Technology that reduces the level of urethral friction up to 95% compared with other catheters, thereby reducing urethral trauma and the risk of infections. 100% latex-free.
Email: customerservice.lofric.us@astratech.com
Phone: 1-877-4LOFRIC (456-3742)
Fax: 310-316-5296

ABC Medical
Phone: 866-897-8588
Fax: 877-785-7396


Classic Care Medical
2000 Bloomington Road, Ste. 220
Glendale Heights, IL 60139
Phone: 630-825-0121
Fax: 888-733-9301

Mark Drug Medical Supply
548A W. Dundee Rd.
Wheeling, IL 60090
Phone: 847-537-8500
Fax: 847-537-9430


National Rehab
540 Lindbergh Dr.
Moon Township, PA 15108
Phone: 800-451-6510

Medline
One Medline Place
Mundelein, Illinois 60060
1-800-MEDLINE
Fax: 1-800-351-1512
service@medline.com
As the nation's largest privately held manufacturer and distributor of healthcare products, Medline manufactures and distributes more than 125,000 products to hospitals, extended care facilities, surgery centers, physician offices and home care dealers. Named one of the "100 Best Places to Work in Healthcare," Medline is headquartered in Mundelein, Ill., and has more than 1,100 dedicated sales representatives to support its broad product line, cost management services and clinical programs.

Active Style
Phone: 773-783-4600

180 Medical
Phone: 877-688-2729 Lisa Berlin or Gretchen
Fax: 888-718-0633

Orsini
This company offers a multitude of medical supplies, including manual wheelchairs and walkers. They do not sell power mobility equipment.
1111 Nicholas Blvd
Elk Grove Village, IL 60007
Phone: 847-860-0240
Fax: 847-238-9023
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Personal Mobility

Shirley Ryan AbilityLab Wheelchair Seating and Positioning Clinic
345 E. Superior St.
Chicago, IL 60611
Phone: 312-238-2998
Fax: 312-238-6040

Rifton Adaptive Equipment creates top quality mobility and seating devices designed to give individuals with spina bifida, cerebral palsy, and other physical challenges the opportunity to gain motor skills and participate fully in life. The Rifton Adaptive Mobility and Positioning Blog offers valuable resources and information for parents and therapists.
Phone: 800-571-8198
Email: sales@rifton.com
Website: www.rifton.com

Illinois Assistive Technology Program
217-522-7985 IATP has devoted a special section of their website to assistive technology funding. This page lists a collection of places to go on the internet that offer assistive technology funding options.

Ramp Builders, Organizations and Projects in Illinois
This list features charitable organizations that build ramps for those in need, but who do not have a funding source.

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Orthotic Vendors


Hanger Orthopedic Group
4801 W. Peterson Ave. Suite 618
Chicago, IL 60646
Phone: 773-777-9494
Fax: 773-777-1310
*Visit the website for other locations.

Keller Orthotics
2451 N. Lincoln Ave.
Chicago, IL 60614
Phone: 773-929-4700
Fax: 773-929-4725
*Visit the website for other locations.

Comprehensive Prosthetics and Orthotics
10408 S Western Ave
Chicago, IL 60643
Phone: 773-779-5896
‎ Main Phone: 888-635-2271
Main Fax: 888-635-3135
*Visit the website for other locations.

Shirley Ryan AbilityLab Orthotics
345 E. Superior St., Rm 1764
Chicago, IL 60611
Phone: 312-238-2810
Fax: 312-238-1932

Scheck and Siress
Chicago-Lincoln Park
2835 N. Sheffield # 301
Phone: 773-472-3663
Fax: 773-472-3668
*Visit the website for other locations.
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Driving Rehabilitation Programs

Alexian Brothers Rehabilitation Hospital
935 Beisner Rd.
Elk Grove Village, IL 60007

847-640-3119

Description: Program is available on Monday, Tuesday and Thursday. One hour is spent with an occupational therapist; one and a half hours are spent behind the wheel (BTW); and one half hour is a meeting and evaluation with both instructors.

Institute of Physical Medicine and Rehab
6501 N. Sheridan Rd.
Peoria, IL 61614
Phone: 309-621-4107
Description: Driving evaluations, behind the wheel, further training if needed. Contact Sara for more information.

Marianjoy Rehabilitation Hospital: Wheaton Campus
26W171 Roosevelt Rd.
Wheaton, IL 60187
Phone: 630-909-6080
Description: Three hour evaluation includes clinical and BTW. A low vision program is also available at this location.

Provena St. Joseph Medical Center
Presence PT and Industrial Rehab Center

825 A Sharp Drive
(corner of Black and 59)
Shorewood, IL 60431
Phone: 815-741-7416
Description: Program is offered Mondays-Fridays and includes one and one half hours of clinical evaluation. BTW component is done separately.

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Special Needs Planning and Legal Assistance

The Arc of Illinois - Illinois Lifespan Project
Phone: 800-588-7002
*Search for advocacy and legal assistance.

The Center for Disability and Elder Law
Phone: 312-376-1880
205 W. Randolph #1610
Chicago IL 60606
312-376-1880 Pro bono legal services for qualifying people with disabilities in Cook County.

Family Benefits Solutions
1110 W. Lake Cook Rd.
Buffalo Grove, IL 60089
Phone: 847-279-8506

Health and Disability Advocates
205 W. Randolph #510
Chicago, IL 60606
Phone: 312-223-9600

Life's Plan, Inc.
901 Warrenville Rd. #500
Downers Grove, IL 60532
Phone: 630-628-7189

Rubin Law: A Professional Corporation
1110 West Lake Cook Road
Buffalo Grove, Illinois 60089
Phone: 847-279-7999
Toll Free: 866-TO-RUBIN (867-8246)
E-mail: email@rubinlaw.com

Harrison & Held LLP
333 W. Wacker #1700
Chicago, IL 60606
Phone: 312-621-5239 Teresa Nuccio

Nash Disability Law
8 S. Michigan Ave.
Chicago, IL 60606
Phone: 312-443-0900

Protected Tomorrows
103 Schelter Rd.
Lincolnshire, IL 60069
Phone: 847-522-8086
Fax: 847-522-8081

Spain Spain & Varnet P.C.
33 North Dearborn Street
Chicago, IL 60602
Phone: 312-220-9112

Waypoint Estate and Business Planning
Donald Olsen
103 Schelter Road, Suite 10
Lincolnshire, IL 60069
Phone: 847-276-2640

National Academy of Elder Law Attorneys, Inc.
Illinois Chapter
P.O. Box 3217
Oak Brook IL 60523

Special Needs Alliance
Phone: 877-572-8472

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Special Education and IEP Resources

Cahill & Associates
1155 S. Washington St., Ste. 106
Naperville, Illinois 60540
Phone: 630-778-6500

Charles Fox Special Education Law
355 W. Dundee #209
Buffalo Grove, Illinois 60089
Phone: 847-205-9897

Family Matters
1901 S. 4th Street, Suite 209
Effingham, IL 62401
866-436-7842, 217-717-8016

Special education, IEP and 504 information and training for people in 94 Illinois counties outside of Chicagoland.

Family Resource Center on Disabilities
11 E. Adams Street, Suite 1002
Chicago, IL 60603
312-939-3513

Special education, IEP and 504 information and training for people in Chicagoland. Click on the link below for an online handbook:

Educational Rights and Responsibilities: Understanding Special Education in Illinois

Parent Advocacy Coalition for Educational Rights (PACER)
888-248-0822
The mission of PACER Center is to expand opportunities and enhance the quality of life of children and young adults with disabilities and their families, based on the concept of parents helping parents. They offer a free online Transition Guide addressing postsecondary education and employment.

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SSI and Medicaid Resources

IL Department of Human Services
Phone: 800-843-6154

Family Benefits Solutions, Inc.
1110 W. Lake Cook Rd.
Buffalo Grove, IL 60089
Phone: 847-279-8506
Contact Sheri Schneider

Health and Disability Advocates
205 W. Randolph #510
Chicago, IL 60606
Phone: 312-223-9600
Contact Health and Disability Advocates

Social Security Administration
Phone: 800-772-1213
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Adult Programs

Esperanza Community Services Coleridge Adult Day Program
520 N. Marshfield Ave.
Chicago, IL 60622
Phone: 312-243-6097

Anixter Center Adult Community Transitions
Highland Park
Phone: 847-266-0052

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Pediatric/Adolescent Programs and Resources

Caring for Kids Program
345 E. Superior St.
Chicago, IL 60611
312-238-1000
Recreational activities for kids with disabilities ages 7-17 through the Shirley Ryan AbilityLab. Contact Ashley for more info.

The Center for Independence Through Conductive Education
Locations in Countryside, Chicago and Lake Zurich
The Center for Independence Through Conductive Education helps children with physical disabilities gain physical independence through programs that develop the motor functions of the child in a manner that creates positive self-esteem and self-direction.
708-588-0833

Cameron Can Foundation
P.O. Box 373
Riverside, IL 60546
773-425-9942
This oganization can provide quality of life grants to Illinois families who care for children with developmental disabilities, especially hydrocephalus. See website or contact them for more info.

Chicago Children's Advocacy Center
1240 S. Damen
Chicago, IL 60608
312-492-3700
Resources for the prevention of abuse of children with disabilities. Click here for more info.

The University of Illinois at Chicago's Division of Specialized Care for Children (DSCC)
Locations throughout Illinois
Phone: (800) 322-3722
Email: dscc@uic.edu

DSCC provides free care coordination for families of children with special healthcare needs. Care coordination is tailored to each family’s needs and can include finding specialized medical care, helping maximize insurance and All Kids/Medicaid benefits, communicating with doctors and schools, preparing youth for the transition to adulthood and paying for certain medical expenses, such as wheelchair ramps, lifts and orthotics. Children from birth to age 21 with certain chronic, treatable medical conditions, including nervous system impairments, are eligible.

Easter Seals National Headquarters
230 W. Monroe, Suite 1800
Chicago, IL 60606
800-221-6827, 312-726-6200

Illinois Dept of Human Services Early Intervention
1-800-447-6404 - Services to help children with disabilities ages 0-3 to learn and grow.

March of Dimes
111 West Jackson, Suite 1650
Chicago, IL 60604
312-435-4007

National Lekotek Center
2001 N. Clybourn Ave.
Chicago, Illinois 60614
773-528-5766
Services to improve the lives of children with special needs through the utilization of toys and play.

Secondary Transitional Experience Program (STEP) - Illinois Department of Human Services
Division of Rehabilitation Services
400 W. Lawrence
Springfield, Illinois 62704
217-785-7751
A program that helps students with disabilities prepare to transition to employment and community participation during and after high school. Contact your local high school or DHS/DRS office for more information.

VARIETY- The Children's Charity of Illinois
1001 W. 75th St
Woodridge, Illinois 60517
312-822-0660
Funding and services for programs that work with kids with disabilities. Grants for adaptive equipment.

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Employment

AbilityLinks
Contact Janice Duvall
Phone: 630-909-7443
Web-based community for job seekers with disabilites. Staff can also provide employment related info and referrals.

Department of Human Services Vocational Rehabilitation
Phone: 800-843-6154

Office of Disability Employment Policy
U.S. Department of Labor
Frances Perkins Building
200 Constitution Avenue, NW,
Washington, DC 20210
866-633-7365, 877-889-5627 (TTY)

ShirleyRyan AbilityLab Vocational Rehabilitation
541 N. Fairbanks, Mezzanine Level
Chicago, IL 60611
Phone: 312-238-6800

Jewish Vocational Service
216 West Jackson Blvd., Suite 700
Chicago, IL 60606
Phone: 312-907-7598

The Job Accommodations Network (JAN)
PO Box 6080
Morgantown, WV 26506-6080
800-526-7234, 304-293-7186

New Hope Center
Provides employment, training, and community service resources for people with disabilities.
1624 E. 154th St.
Dolton, IL 60419
Phone: 708-841-1071 x233
Fax: 708-841-1053

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Counseling

The Center for Identity Potential
1400 Renaissance Drive, Suite 440
Park Ridge, IL 60068
Phone: 312-624-9815

The Center for Identity Potential is a counseling practice that focuses on people who have exceptionalities and are looking for a unique fit. We offer specialized mental health counseling services for individuals, couples, and families who have a physical disability or chronic illness.

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Advocacy

Access Living
115 W. Chicago Ave.
Chicago, IL 60654
312-640-2100

Equip for Equality
20 N. Michigan Avenue, Suite 300
Chicago, IL 60602
800-537-2632

Open Doors Organization
8600 W. Catalpa Ave, Suite 709
Chicago, IL 60656
773-388-8839

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Research

ClinicalTrials.gov

A database of clinical studies related to Spina Bifida. A service of the U.S. National Institutes of Health.

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