General Information and Programs
Spina Bifida Association
1600 Wilson Blvd, Suite 800 Arlington, VA 22209
Guidelines for the Care of People with Spina Bifida - The Guidelines were developed to provide every healthcare professional–from generalists to specialists–a road map of the best evidenced-based and expert treatment available from birth through adulthood.
ABLE Accounts Information (Achieving a Better Life Experience)
ISBA ABLE Savers Program - ISBA's new ABLE Savers program promotes workforce development among adults with spina bifida by pairing adults with community social workers to assess barriers and action steps related to participating in vocational training and employment; increase knowledge about vocational training resources and ABLE accounts; and to facilitate linkages to ABLE accounts and advocates specializing in Medicaid and Supplemental Security Income (SSI).
ABLE National Resource Center - (ANRC) is a collaborative whose supporters share the goal of accelerating the design and availability of ABLE accounts for the benefit of individuals with disabilities and their families.
Illinois ABLE - The Illinois ABLE program is a tax-advantaged investment program that provides persons with blindness or disabilities the option to save for disability-related expenses without putting their federal means tested benefits at risk.
Americans with Disabilities Act Disability and Business Technical Assistance Centers (DBTACs)
Provides information, referral, technical assistance, and training on the ADA.
The ARC of IL
20901 LaGrange Road Suite #209
Frankfort, IL 60423
Committed to empowering persons with disabilities to achieve full participation in community life through informed choices. They have a Technology Program that helps fund assistive technology devices for people with disabilities.
Aspire (Eamon Shannon Center HQ)
1815 South Wolf Road
Hillside, IL 60162
Aspire’s mission is to support the successes of children and adults with developmental disabilities, strengthen their families and build embracing communities.
An online list of some of the resources for young children with special needs in the Champaign/Urbana area. Many of the organizations were recommended by local families who have children with special needs.
Community Support Services
9021 Ogden Avenue
Brookfield, IL 60513
Initiates, provides and promotes services for people with intellectual/developmental disabilities and their families, within their communities, in order to strengthen their independence, self-esteem, and ability to participate in and contribute to community life. For residents of western Cook or eastern DuPage counties.
Council for Exceptional Children, Division on Career Development and Transition
Promotes efforts to improve the quality of and access to career/vocational and transitional services, increases the role of education in career development and transition goals, and influences policies affecting services for persons with disabilities.
4340 East West Highway, Suite 905
Bethesda, MD 20814
HA gathers together resources and connects individuals to larger communities that can provide support and understanding. They provide an online resource library and common space for those living with hydrocephalus.
Jewish Child & Family Services of Chicago
Central Office - 216 W. Jackson Blvd, Suite 800
Chicago, IL 60606
Services for People with Disabilities & their families.
National Council on Independent Living
2013 H St. NW 6th Floor Washington, D.C. 20006
7660 Gross Point Road
Skokie, Illinois 60077
Partners with families and communities to optimize personal outcomes for individuals with developmental disabilities through a community-integrated approach.
OSF HealthCare Care Navigator for Children and Adults with Spina Bifida
800 NE Glen Oak Avenue
Peoria, Illinois 61603
Phone: (309) 624-4000
Information about available services and programs for people with spina bifida and their families in the Peoria area.
Shirley Ryan AbilityLab: Life Center
355 E. Erie Street
Chicago IL 60611
The Henry B. Betts LIFE Center is a multimedia education center that provides opportunities for Learning, Innovation, Family and Empowerment for people with disabilities, their families, health professionals and the community.
The Simon Foundation for Continence
Post Office Box 815
Wilmette, IL 60091
Dedicated to: bringing the topic of incontinence out into the open, removing the stigma surrounding incontinence, and providing help and hope for people with incontinence, their families, and the health professionals who provide their care. They have an online Simon Fact Sheet Library that includes bladder and bowel information.
United Way of the Quad Cities Area Community Resources At-A-Glance
852 Middle Road, Suite 401
Bettendorf, IA 52722
List of resources in the Quad Cities area.