Healthcare Resources, Hospitals, and Spina Bifida Clinics

Ann & Robert H. Lurie Children's Hospital of Chicago Spina Bifida Clinic

2515 N. Clark St.
Chicago, IL 60614
Phone: 312-227-5340

Clinic is usually held every Tuesday morning beginning at 9 a.m. They currently serve approximately 20-25 patients per day and provide care for patients ranging from birth to 21 years of age. The clinic has a shuttle that runs to and from the hospital and is located near convenient public transportation. They do accept public aid. A list of other accepted insurance programs can be found on their website at Click here for the clinic webpage. To make an appointment call 312-227-5340.

Ann & Robert H. Lurie Children’s Hospital of Chicago Neurointestinal and Motility Program (NIM) provides comprehensive diagnostic evaluation and treatment for patients with complex motility disorders. 1.800.543.7362


The Shirley Ryan AbilityLab (formerly the Rehabilitation Institute of Chicago) Adult Spina Bifida Clinic

355 E. Erie St.
Chicago, IL 60611
Phone: 1-844-355-ABLE or 312-238-1000

The Shirley Ryan AbilityLab offers an Adult Spina Bifida Clinic, a multidisciplinary clinic for adults with spina bifida. The clinic includes specialist physicians in neurosurgery, urology, orthopaedics and physiatry (a doctor who specializes in physical medicine and rehabilitation). This clinic is offered on the first Friday morning of each month on the fifteenth floor of the new hospital, located at 355 E. Erie Street in Chicago. Because space is limited, appointments should be scheduled at least three to four months in advance. There is a parking garage attached to the building. For more information on scheduling an appointment in the Adult Spina Bifida Clinic, call 1-844-355-ABLE or 312-238-1000.  They also have a Pain Management Center that provides a supportive, challenging, active care environment for patients experiencing chronic pain.  


Shriners Hospitals for Children - Chicago

2211 N. Oak Park Ave.
Chicago, IL 60707
Phone: 773-622-5400, 800-470-0232

The Myelomeningocele Clinic is held on the 1st, 2nd, 4th, and 5th Thursdays of the month beginning at 8:30 A.M. New patients can request an appointment by calling 800-470-0232. Approximately 15 patients are seen in clinic per day ranging in age from infancy to their age limit of 21 years old. The clinic is close to the Metra train as well as the CTA. Children and adolescents receive all services in a family-centered environment. Click here for the clinic webpage.


OSF Healthcare Children’s Hospital of Illinois

Spina Bifida Clinic
420 N.E. Glen Oak, Suite 301
Peoria, IL 61603
Phone: 309-624-4064

The Spina Bifida Clinic is held on the second Monday of each month. The clinic is a multi-disciplinary facility, which aids families in meeting the special challenges associated with Spina Bifida. The staff consists of a developmental pediatrician, neurosurgeon, orthopaedist, urologist, neuropsychologist, neurodevelopment/physiatry physicians, and clinic coordinator. They also include representatives from: orthopaedic supplies, physical therapy, dietary, Department of Specialized Care for Children (DSCC), and social services. The Clinic is part of the Pediatric Surgery Center, located in Hillcrest Medical Plaza, 420 N.E. Glen Oak Ave., Ste. 301. For more information or to make an appointment, please contact 309-624-4064.


OSF St Francis Medical Center/Children’s Hospital Of Illinois Adult Spina Bifida Clinic

1001 Main Street, Suite 401
Peoria, IL 61603
Phone: 309-624-4064

The clinic is held 4 times/year during months that have a 5th Monday at 2:00 pm. Staff include: Neurosurgery, urology, IM/Peds physician, social worker, and clinical coordinator. For more information or to make an appointment, please contact 309-624-4064.

Loyola Medicine

2160 S. First Ave. 
Maywood, IL 60153

The Spina Bifida Clinic is open with a full team of specialists available to see you at each appointment.  The clinic's multidisciplinary approach provides a comprehensive medical care plan while offering you the convenience of one appointment.  You can see orthopedics, physiatry, neurosurgery, urology, podiatry and social work.  There are no age limits on this clinic and no need to transition to another program at the age of eighteen.   Appointments are available the fourth Wednesday of every month in the Loyola Outpatient Center. 

Click here for more info about Loyola Medicine

Riley Children’s Health at Indiana University Health

Pediatric Care Center - Developmental Pediatrics
1002 Wishard Blvd
Indianapolis, IN 46202
317-944-4846 for pediatrics and 317-944-7458 for adults

The Spina Bifida Program is a multidisciplinary program that includes pediatric experts in neurosurgery, orthopedics, developmental pediatrics, physical medicine and rehabilitation and urology. We also provide nutritional care, social services and physical therapy if needed. The doctors and surgeons with the Spina Bifida Program also provide the same multidisciplinary care for patients as they transition into adulthood. This allows your child to see the doctors he or she needs to see by self-referral and by physician referrals. Pediatric clinic takes place all day every Tuesday and adult clinic is on the 2nd Thursday of the month.  

The University of Chicago Medicine

5841 S. Maryland Avenue
Chicago, Illinois 60637
1-888-824-0200 or 773-702-1000

Spina Bifida Clinic


Mercyhealth Hospital - Rockton Avenue Pediatric Special Needs Clinic

Mercyhealth Orthopedic Center of Excellence, Building 2, Fourth Floor, 2350 N. Rockton Ave.
Rockford, IL
Phone: (815) 971-7400

The clinic is held the fourth Wednesday of the month, starting in January 2018. The clinic serves patients from birth to age 18 with a variety of special needs, including spina bifida, developmental/motor delays, bracing, gait disturbances, and neonatal intensive care unit graduates. They would possibly see adult patients as well, call them for more info. Pediatric specialists available for consult include: Orthopedic Surgery, Rehabilitation Medicine, Neurology, Orthotics, Physical Therapy, Occupational Therapy, Social Services, Social Support Groups, and Coordination with Rockford Spine Center. Click here for more info.


Advocate Children's Hospital

4440 W. 95th St.
Oak Lawn, IL 60453
Phone: 708-684-1013

Advocate Children's Hospital has a multidisciplinary team that treats children with spina bifida. The team includes specialists in neonatology, neurodevelopment, neurology, neurosurgery, occupational therapy, physical therapy, physiatry, and social work.  They also have a Pediatric Developmental Center, treatment programs for your child, as well as training, education and support groups for your family. Phone: 773-296-7340.


Advocate Lutheran General Children's Hospital

1675 Dempster Street
Park Ridge, IL 60068
Phone: 1.800.3.ADVOCATE

Advocate Lutheran General Children's Hospital has a multidisciplinary team that treats children with spina bifida. The team includes specialists in neonatology, neurodevelopment, neurology, neurosurgery, occupational therapy, physical therapy, physiatry, and social work.


Children's Hospital St. Louis

One Children's Place
St. Louis, MO 63110
(314) 454-5333

Spina Bifida Clinic appointments are available the second and fourth Tuesday of the month, 8 a.m. to 4 p.m., in Suite 2A, second floor of St. Louis Children's Hospital. For appointments call 314.454.KIDS (5437) or 800.678.KIDS (5437), ask for Shellie.


Marianjoy Rehabilitation Hospital

26W171 Roosevelt Rd. 
Wheaton, IL 60187
(630) 909-8000 or (800) 462-2366

Offers inpatient and outpatient services including physical rehabilitation for adults and children.

Click here for more info


Northwestern Medicine

675 N. St. Clair
Chicago, IL 60611
(312) 926-2000

Northwestern has several departments relevant to adults with Spina Bifida, including urology, orthopedics, and neurology.  The Women's Integrated Pelvic Health Program delivers comprehensive health care for women with pelvic floor disorders from a range of specialists, including: urogynecologists, urologists, colon and rectal surgeons, physiatrists, and pelvic floor physical therapists.  They offer comprehensive evaluation and treatment at Northwestern Memorial HospitalLake Forest Hospital, and Central DuPage Hospital.  

Click here for more info


Shriners Hospitals for Children - St. Louis

2001 S. Lindbergh Blvd.
St. Louis, MO 63131
Phone: 314-432-3600, ext. 1672
 - new patients ext. 1122

Spina Bifida Clinic is the 4th Friday of the month. Click here for more info.


Hydrocephalus Association (HA) Physician’s Directory

An interactive tool to locate specialists to manage your condition. The directory includes neurosurgeons, neurologists, and neuropsychologists for all ages.  You can search by location, specialty and age range.

Health Resources & Services Administration (HRSA) Health Center Program Health Center Finder

Health centers are community-based and patient-directed organizations that deliver comprehensive, culturally competent, high-quality primary health care services. Health centers also often integrate access to pharmacy, mental health, substance use disorder, and oral health services in areas where economic, geographic, or cultural barriers limit access to affordable health care services. They typically provide services regardless of patients’ ability to pay and charge for services on a sliding fee scale. Use this tool to type in your address and find one close to you.

Illinois Dental Clinics is a website maintained by volunteers that lists sliding scale and low cost dental clinics in Illinois.

NeedyMeds is a 501(c)(3) national non-profit information resource dedicated to helping people locate assistance programs to help them afford their medications and other healthcare costs.