An ISBA family had a situation.
Because of COVID, their work hours had been cut and they fell behind on their water bill. Mary had always taken care of Daniel, their young adult son with SB. She had applied to be his personal care assistant, but the application was stuck.
ISBA helped the family pay their water bill with utility assistance funds from a Global Genes RARE Patient Impact Grant. Then, one of ISBA's community social workers helped Mary advocate to get her application processed.
"Now," says Mary, "we can pay our water bills and Daniel doesn't have to receive care from a stranger."
The Illinois Spina Bifida Association is grateful to Global Genes for its generous support in 2020 through Continuity of Care and Financial Advocacy RARE Patient Impact Grants. Read more about Global Genes.
